Dear CTNNB1 community,
As summer comes to a close, we hope you’ve had time to rest, recharge, and enjoy moments with your loved ones. Many of our CTNNB1 children are also heading back to school, and we wish them lots of success, growth, and – most importantly – fun in the year ahead. 🎒🍀
With renewed energy, our team is also stepping into the new season ready to take on the challenges and opportunities ahead.
This month, we’re excited to share important updates, from our presence at international conferences and progress in research, to the latest developments in our Dragonfly study. Together, these milestones bring us one step closer to our shared mission: advancing treatments and improving lives for everyone affected by CTNNB1 syndrome. 🩵
👉 Download the September 2025 Newsletter (PDF)
Best,
The CTNNB1 Team