Our Team
Leading team
Špela Miroševič, PhD
Founding President
Samo Miroševič
Co-founder
Lavra Debeljak
Research and Patient Relations Associate
Bruno Ramalho
Technical Director
Ana Gonzalez Hernandez, PhD
Vice President
Estibaliz Martin Medina
Spanish Network Lead and President of Asociación CTNNB1 España
Medical & Scientific Advisory Team
Clinical Team
Damjan Osredkar, MD, PhD
Pediatric Hospital Ljubljana
Nina Žakelj, MD
University Medical Centre Ljubljana
Peter Spazzapan, MD
University Medical Centre Ljubljana
Mojca Žagar
University Medical Centre Ljubljana
Petra Pohleven
University Medical Centre Ljubljana
Alenka Piskar
University Medical Centre Ljubljana
Michelle Ferrar
Sydney Children's Hospital
Amaia Lasa Aranzasti
Hospital Universitari Vall d'Hebron
Mercè Pallares Sastre
University Deusto
Maitane García Martín
University Deusto
Sofia Montenegro
Associação do Porto de Paralisia Cerebral
Joanna Wawrzyniak
Polish Team
Barbara Eva Jasinska
Polish team
Preclinical Testing
Duško Lainšček, PhD
National Institute of Chemistry
Vida Forstnerič, PhD
National Institute of Chemistry
José Luis Lanciego Pérez, PhD
Cima Universidad de Navarra (CIMA)
Jan Procházka
CCP
Eva Štefancova
CCP
Uršula Prosenc Zmrzljak, PhD
Labena
Estera Merljak Zupančič, PhD
Labena
Vector Development & Initial Preclinical Testing
Leszek Lisowski, PhD
Children’s Medical Research Institute
Andrea Perez-Iturralde, PhD
Children’s Medical Research Institute
Product Manufacturing & Labeling
Cristina Martín Quintín
Viralgen Vector Core
Sonya Banks
Viralgen Vector Core
Almac Group Limited
Clinical Trial Preparation Team
Mario Hercezi
ADAX, International Clinical And Regulatory Organization
Tamara Odar
ADAX, International Clinical And Regulatory Organization
Klavdija Škrlep
ADAX, International Clinical And Regulatory Organization
Florencia Haase, PhD
Children’s Medical Research Institute
Independent Consultants
Shivang Khandelwal
IOCB Prague
Rodney Samaco
AUCDS
Ruud Bueters
3D-PharmXchange
Elise Destree
3D-PharmXchange
Basel Assaf
Tassaro LLC
Joy Cavagnaro
Access BIO
Patient-driven Organisation Support
Terry Pirovalski
Elpida & SPG50
Julia Taravella
Rare Trait Hope Fund
Pat Furlong
Parent Project Muscular Dystrophy (PPMD)
Amber Freed
SLC6A1 Connect
Fundraising & Journalistic Team
Larisa Štoka
Palčica Pomagalčica
Katarina Podgajski
Palčica Pomagalčica
Ratko Stojiković
Journalist and Cameraman
Board of directors
Špela Miroševič, PhD
Founding President
Samo Miroševič
Board Member
Petra Prunk, MD
Board Member
Tanja Lavrič, MD
Board Member
Biserka Božičnik Križanec
Treasurer