There are many ways you can help! We are very grateful for any help we can get. If you have any further ideas or want to help in any way, please do not hesitate and contact us on


If you have a Facebook, Instagram, or Twitter Page, go to our GoFundMe page and share our story. This way, we can be seen by many more people, can raise more money and spread the awareness of the CTNNB1 syndrome.

Join our Team

If you are a parent of a child affected with CTNNB1, researcher or just someone who wants to help –  join our team. We welcome anyone who shows determination to cure our kids!


Help us fundraise for our cause. This can be in the form of small birthday fundraisers to big community events, like a Tennis Tournament or Gala Event. Please contact us for more information.


Click on the preferred option below.

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