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THIS IS YOUR CHANCE TO CHANGE LIVES

There are many things we cannot control. Fundraising isn’t one of them. 

For families facing rare diseases like CTNNB1 Syndrome, there are often no established systems to fund treatment development. This means parents and loved ones must take on the challenge themselves — raising the awareness, the support, and the resources needed to move science forward.

At the CTNNB1 Foundation, our top priority right now is advancing Gene Replacement Therapy — a groundbreaking approach with the potential to change lives.

Here’s how you can help make it a reality:

  • Direct Donation on Our Website – You can make a one-time donation or decide to support us on a monthly basis 🫶
  • Givebutter – all proceeds go directly to support the GAIN Clinical Trial 🧬
    – This option is optimal for US Donors (Tax-Deductible Receipt): Donate through our sister organization, a registered 501(c)(3) entity in the US on Givebutter
  • PayPal: Use our PayPal platform to make your donation quickly and securely.
  • Direct Bank Transfer:
    Name: FUNDACIJA CTNNB1, USTANOVA ZA RAZISKAVE NA PODROČJU GENSKE TERAPIJE
    Address: Dalmatinova ulica 5, Ljubljana
    Registration Number: 4125878000
    Tax Number: 62919571
    Bank Account: SI56 6100-00025350715
    Bank Name: HDELSI22 / Delavska hranilnica d.d., Ljubljana

Gene Replacement Therapy

RNA-Based Therapy

Small Molecule Research

Donations can be made directly by clicking to each of the options above. If you would like to make your own fundraising campaign via our website, please reach out to bruno@ctnnb1-foundation.org or spela@ctnnb1-foundation.org.

We can set up your own fundraiser and we can help you with preparing the material and supporting you through every step. 

Fundraising for Gene Replacement Therapy

Donations not specifically dedicated to the cause above, will be directed towards the Gene Replacement Therapy program, which is our primary focus at the moment.
 
Here are the various ways you can support this program:
 
  1. Direct Donation on Our Website: Visit our website and choose the “Gene Replacement Therapy” option to make a direct donation.
  2. GoFundMe: Contribute through our GoFundMe link to support the Gene Replacement Therapy program.
  3. PayPal: Use our PayPal platform to make your donation quickly and securely.
  4. Direct Bank Transfer:
    • Name: FUNDACIJA CTNNB1, USTANOVA ZA RAZISKAVE NA PODROČJU GENSKE TERAPIJE
    • Address: Dalmatinova ulica 5, Ljubljana
    • Registration Number: 4125878000
    • Tax Number: 62919571
    • Bank Account: SI56 6100-00025350715
    • Bank Name: HDELSI22 / Delavska hranilnica d.d., Ljubljana
  5. For Spanish Donors: Asociación CTNNB1 in Spain is a powerful advocate for families, with 30 families coming together to organize numerous events nationwide. Click HERE to learn more about their organization and ways to support our program.
  6. For German Donors: Families and supporters coming from German-speaking countries have organized themselves and are currently fundraising via GoFundMe platform: https://gofund.me/e6b03974
  7. For US Donors (Tax-Deductible Receipt):
  8. Create your own personalized fundraising brochure to share with your community or workplace in support of our gene therapy program (available in multiple languages below). Send us your child picture and information to lavra@ctnnb1-foundation.org
    – Brochure EN
    – Brochure ES
    – Brochure PT
    – Brochure IT
    – Brochure DE
    – Brochure FR
    – Brochure PL
    – Brochure SLO
Your support is crucial in advancing our mission to initiate our first CTNNB1 community clinical trial.
Thank you for your generosity.