DONATE
There are so many things that are not in our control. Fundraising is not one of them.
In rare diseases like ours, there are often no established mechanisms to support such programs, leaving families to shoulder much of the hard work.
At the CTNNB1 Foundation, we support any research initiative that has the potential to benefit our community. While our primary focus for 2024/2025 is Gene Replacement Therapy, we also support RNA-based Therapies being developed by researchers at the National Institute of Chemistry. Similarly, families and supporters can donate to Small Molecule research, which is primarily supported by the CTNNB1 Connect & Cure organization (read more about their research HERE).
Donations can be made directly by clicking to each of the options above. If you would like to make your own fundraising campaign via our website, please reach out to bruno@ctnnb1-foundation.org or spela@ctnnb1-foundation.org.
We can set up your own fundraiser and we can help you with preparing the material and supporting you through every step.
Fundraising for Gene Replacement Therapy
- Direct Donation on Our Website: Visit our website and choose the “Gene Replacement Therapy” option to make a direct donation.
- GoFundMe: Contribute through our GoFundMe link to support the Gene Replacement Therapy program.
- PayPal: Use our PayPal platform to make your donation quickly and securely.
- Direct Bank Transfer:
- Name: CTNNB1 Foundation, The Gene Therapy Research Institute
- Address: Dalmatinova ulica 5, Ljubljana
- Registration Number: 4125878000
- Tax Number: 62919571
- Bank Account: SI56 6100-00025350715
- Bank Name: HDELSI22 / Delavska hranilnica d.d., Ljubljana
- For Spanish Donors: Asociación CTNNB1 in Spain is a powerful advocate for families, with 30 families coming together to organize numerous events nationwide. Click HERE to learn more about their organization and ways to support our program.
- For German Donors: Families and supporters coming from German-speaking countries have organized themselves and are currently fundraising via GoFundMe platform: https://gofund.me/e6b03974
- For US Donors (Tax-Deductible Receipt):
- CTNNB1 Connect & Cure: Donate through our partner organization, a registered 501(c)(3) entity in the US. When donating through givebutter.com, make sure to select “Gene Therapy” to ensure your donation goes to this program.
- The Rare Village Foundation: Another option for US donors, this partner organization is also a registered 501(c)(3) entity. They will process your donation and provide you with a tax-deductible receipt.
