Dear CTNNB1 community,
As we enter the heart of the holiday season, we hope you’re able to slow down, find moments of warmth, and enjoy time with the people you love. This is a busy and meaningful month for our community, and we are grateful for every family, researcher, clinician, and supporter who continues to walk this journey with us.
In this edition, we share reminders for families in the Dragonfly NHS regarding clinical examinations, along with fundraising news. You’ll also find research and clinical milestones, and updates on clinical trials. Additionally, we provide details on the now-open clinical trial enrollment process and a short statement on the process of selecting clinical trial participants.
As we close out the year, we feel deep gratitude for this community and the shared hope driving every step forward. Thank you for your trust, your patience, and your unwavering support.
Wishing you a peaceful holiday season and a bright start to the new year. 🎄✨
👉 Download the December 2025 Newsletter (PDF)
Best,
The CTNNB1 Team