Dear CTNNB1 community,
As we prepare to gather once again for our annual conference, this month’s newsletter is filled with exciting updates from across our global community. From major research milestones and clinical trial progress to preparations for the upcoming conference in Barcelona, there is much to celebrate and look forward to.
Inside, you’ll find highlights from recent scientific meetings, important conference information, updates on our Natural History Study and clinical trial programs, and opportunities to connect with fellow families, researchers, and clinicians. We also share ways you can help support the future of CTNNB1 research and ensure that our work continues to move forward.
Thank you for being part of this journey. Every family, researcher, clinician, donor, and supporter plays an important role in bringing us closer to a better future for individuals living with CTNNB1 syndrome.
We look forward to seeing many of you in Barcelona very soon.
The CTNNB1 Team
👉 Download the June 2026 Newsletter (PDF)
Best,
The CTNNB1 Team