OUR TEAM
Špela miroševič, MS
Co-Founder, President
Founder and President of the CTNNB1 Foundation and mother of Urban, a sweet boy and the reason she created this Foundation. Špela is a psychotherapist and a biopsychologist, working as a researcher at the Medical University Ljubljana. Her work is focused on exploring unmet needs of cancer survivors and teaching mindfulness programs.
Špela spends her nights working to advance ongoing research on CTNNB1 Syndrome. She is writing a systematic review on published literature and is communicating with researchers around the world in an attempt to best help children affected with this syndrome.
Špela is determined to establish a cure for Urban and every other child with this syndrome.
Samo Miroševič, MSE
Co-Founder
Petra Prunk Križanec, MD
Vice-President
Petra is a paediatric resident, working at the University Children’s Hospital at the University Medical Centre Ljubljana.
She was first familiarized with CTNNB1 Syndrome at the time of Urban’s diagnosis. Through his struggles, Urban has taught that it is possible to live happily despite his syndrome. She hopes that the future will bring successful results and new therapeutic possibilities for Urban and children like him, who beat daily battles due to their rare disease.
Tanja Lavrič, MD
Vice-President
Tanja is a doctor specialist in Neurology. She works at the Department of Vascular Neurology and Intensive Therapy at the Division of Neurology at the University Medical Center Ljubljana.
When Tanja met Urban, his mother introduced her to this project that could change his life forever. She knew immediately that she wished to be involved and to help in any way she can. She finds Urban to be the sweetest boy she has ever met and is looking forward to all his future victories. At the same time, she feels very grateful to be a part of a small but significant piece of this complex puzzle.
OUR RESEARCH TEAM
Children’s Medical Research Institute and University of Sydney; Group Leader, Molecular Neurobiology Laboratory
Children’s Medical Research Institute and University of Sydney; Translational Vectorology Unit and Manager
University Children’s Hospital Ljubljana; Head of the Pediatric Neurology Department
National Institute of Chemistry Slovenia; Head of the Department of Synthethic Biology and Immunology
National Institute of Chemistry Slovenia; Researcher at the Department of Synthethic Biology and Immunology
National Institute of Chemistry Slovenia; Researcher at the Department of Synthethic Biology and Immunology
National Institute of Chemistry Slovenia; Researcher at the Department of Synthethic Biology and Immunology
National Institute of Chemistry Slovenia; Researcher at the Department of Synthethic Biology and Immunology
National Institute of Chemistry Slovenia; Researcher at the Department of Synthethic Biology and Immunology
Nina Žakelj, MD
University Children’s Hospital Ljubljana; Resident Doctor at the Pediatric Neurology Department
Italian Institute of Technology; Group Leader of the Neurobehavioural Genetics Group
Italian Institute of Technology; Post-Doc at the Neurobehavioural Genetics Group
Shivang Khandelwal
Indian Institute of Technology Jodhpur (BioTechnology), India
School of Life Sciences; Group Leader; Director of the Laboratory of Drosophila Research, Hong Kong
Hugh Kaul Precision Medicine Institute, School of Medicine, University of Alabama
Hugh Kaul Precision Medicine Institute, School of Medicine, University of Alabama, Genetics Research Devision
Hugh Kaul Precision Medicine Institute, School of Medicine, University of Alabama, Director and Chair of Precision Medicine
Hugh Kaul Precision Medicine Institute, School of Medicine, University of Alabama, Director of Research and Operations
