WALKING WITH URBAN
Help Urban and other families to turn fear into faith and hope into cure
Walking with Urban is the name of the campaign in which we are raising funds to develop a gene therapy program for CTNNB1 Syndrome.
We have a long road ahead of us, but knowing that this can return our lives back, is priceless. Knowing that Urban might be able to be independent, to be able to run with his little sister and say to us “Mom, Dad, I love you”, is priceless.
We are determined that we will not stop until the treatment for him and every other child with this syndrome is developed.
We need your help. We are going to accept any support there is. Funding, sharing, warm hugs, supportive comments and ideas how to move forward faster are more than welcomed.