Welcome to CTNNB1 Awareness Day! Today, we come together to shine a light on CTNNB1 syndrome, a rare genetic disorder that affects individuals and families worldwide. This day is dedicated to raising awareness, fostering understanding, and supporting those who live with CTNNB1 syndrome every day.
What is CTNNB1 Syndrome?
CTNNB1 syndrome is caused by mutations in the CTNNB1 gene, which plays a crucial role in cell signaling and development. Individuals with CTNNB1 syndrome often experience a range of developmental delays, intellectual disabilities, and physical challenges. Despite these difficulties, many people with CTNNB1 syndrome lead fulfilling lives with the support of their families, communities, and dedicated medical professionals.
Our Mission
Our mission on CTNNB1 Awareness Day is to increase awareness and understanding of this condition. By spreading knowledge, we can foster a supportive community, encourage research, and ultimately improve the lives of those affected by CTNNB1 syndrome.
How You Can Help
We have set an ambitious goal to raise 1.2 million, which will enable us to fund critical research and progress towards our first CTNNB1 community clinical trial.
Here’s how you can help:
Create your own fundraiser
One of the most impactful ways you can contribute is by creating your own fundraiser. Whether you engaging your local media, organizing a golf tournament, or setting up your
fundraising campaign, your efforts will make a significant difference. Every euro raised brings us one step closer to our goal and helps provide much-needed resources for CTNNB1 research and support.
Donate directly to our campaign
If you’re unable to organize a fundraiser, you can still make a huge impact by donating directly to our campaign. Every donation, no matter the size, matters. Your generosity will directly support our research initiatives directed towards bringing our gene therapy treatment to the clinic.
Join us in spreading awareness
In addition to fundraising, spreading awareness is a key part of our mission. You can help by:
– Sharing information about CTNNB1 syndrome on social media
– Talking to friends, family, and colleagues about the condition
– Encouraging others to participate in CTNNB1 Awareness Day activities
– Using the hashtag #CTNNB1AwarenessDay in your social media channels.
Thank You for Your Support
We are incredibly grateful for the support of our community. Together, we can make a difference in the lives of those affected by CTNNB1 syndrome. Thank you for joining us on CTNNB1 Awareness Day and helping us reach our goal of 1.2 million euros. Your efforts, donations, and advocacy are invaluable.
Let’s make this CTNNB1 Awareness Day a powerful step towards a brighter future for everyone affected by CTNNB1 syndrome.