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We’re thrilled to share groundbreaking news: the Slovenian government has awarded €1 million in public funding to the CTNNB1 Foundation to support the development of URBAGEN — the world’s first gene therapy for CTNNB1 Syndrome. This is the first time a government has publicly backed a nonprofit-led gene therapy at such an early stage. The …

Slovenia Awards €1M to CTNNB1 Foundation – A Breakthrough for Rare Disease Treatment Read More »

Welcome to CTNNB1 Awareness Day! Today, we come together to shine a light on CTNNB1 syndrome, a rare genetic disorder that affects individuals and families worldwide. This day is dedicated to raising awareness, fostering understanding, and supporting those who live with CTNNB1 syndrome every day.     What is CTNNB1 Syndrome? CTNNB1 syndrome is caused …

25th of July is CTNNB1 Syndrome Awareness Day: Join us in Our Fight! Read More »